We need your support to raise funds & awareness.Help us find a cure for Cystic Fibrosis!
 
We worry like all parents, we worry about the future,  but we live in hope.

 

When we found out our baby daughter Jessie had Cystic Fibrosis little did we know what we were in for. To say it was "Life changing" would be a massive understatement.

Dealing with Cystic Fibrosis is a daily ritual and relentless. There is no escaping it. The stress and pressure affects the whole family, and simply coping with everyday life can be challenging at times.

Cystic Fibrosis [CF] is the most common, genetically acquired, life-shortening chronic illness affecting young Australians today, yet most of us wouldn't have a clue what it is.

Unless a cure is found Cystic Fibrosis will eventually take your life. A successful lung transplant only buys you time, it does not cure you of Cystic Fibrosis.

All newborn babies in Australia are now screened for Cystic Fibrosis. The heel prick blood test is done around the sixth day after birth. In the majority of cases you will never hear back from anyone which means good news, unfortunatly for us that phone call came 5 weeks after Jessie was born.

Our aim is to raise funds and awareness to ultimately help find a cure for Cystic Fibrosis. That being said we can't achieve this without your help.

There has been huge advancements in Cystic Fibrosis over the years, in fact it was not long ago that many were dying before the age of 5. Without the help of donations this progress would not be possible. There is little government support given to CF research.

A cure is not just simply years away but dollars away. With your kindness and help we can get closer and one day make CF stand for CURE FOUND.

This website is dedicated to Jessie. We as parents [Ivy and Marc] and her older brother Jamie love her with all our heart and like all parents will do whatever it takes to give her the best shot at life and to one day hopefully breathe easy.

To find out more about Cystic Fibrosis we recommend you visit the Cystic Fibrosis Australia website - http://www.cysticfibrosis.org.au/

Hope In Action

You can help

There is little to no Government support given towards research. Without your help recent advancements in treatments, medication, care and getting closer to a cure would be near impossible.

Get involved

Please visit our News & Events page to see how you can help.  "BUY TICKETS" to our next event. There are many ways you can support us!

 

Donate

A donation goes a long way to helping us make progess. No amount is too small.

Every dollar takes us one step closer to making CF stand for "CURE FOUND"             >Donate



Give From the Heart!

Help us find a cure by making a donation.

Your donation goes directly to the The Royal Children's Cystic Fibrosis Research Trust.

Research projects are based at the Melbourne's Royal Children's Hospital (RCH), one of the worlds leading paediatric teaching hospitals, The RCH currently has more than 300 CF patients under its care.

Every dollar raised goes directly to research